Update from the hematologist

Alayna is NOT pleased with the thought of another doctors appointment and especially the thought of MORE dreaded blood work.

FORTUNATELY...

Susie (the sweetest nurse) from the hematologist's office just called to say that the doctor has looked over Alayna's follow up lab work and from the results she does NOT want to see her for a follow up appointment. We are so thankful for all your prayers!

Alayna is delighted at the news that she won't have to have anymore blood drawn (at least not until her yearly check up at the down syndrome clinic next April!)

It is such a beautiful day and daddy is home early....off to enjoy the sunny day!

A farmer?

Alayna has decided the past few days that she is going to pursue a career in farming.

The early bird gets the worm or something like that.

My daughter who usually gets up at 7am has been up by 5:30 each morning all week! I thought it was just a growth spurt but, she isn't eating and going back to sleep she is WIDE awake and HAPPY! (I am thankful for her laughter, smiles, and coos that early because if she were cranky I think I would just hide my head under my pillow ~like the boys in the family do ~not mentioning any names!)

Unfortunately, it has knocked her off her schedule and she has been ready for a morning nap at 7am. WHAT? Just when Aidan decides to get up she is going down for a nap? Who made this schedule anyway.

We were SO pleased to have the magnificent LC and her adorable mom, Courtney join us in baby class today! Although, Alayna only having a 45 minute nap all morning was a little grumpy (did I say a little?) She wasn't happy with music, or playing on the floor and even poked out her bottom lip at the pool today...LC definitely was wide awake and taking in all the class.

I have tried to discourage the farming career as it is way too early for an old hen like me!

I talked to the hematologists nurse today (best I can I have lost my voice due to sinus stuff). The doctor is at a conference this week and hasn't looked at Alayna's blood work from last Friday yet. She promised a return call by Friday.

We also set up an appointment with Infant Toddler Services of Johnson County for next Tuesday. They provide in home therapies which we will use to supplement the services Alayna is already receiving at the Lee Ann Britain Center.

Happy Easter~

Saturday was a great day...We began by
decorating eggs with our cousins, Grace & Rayne.

Then Aunt Elise took the 3 big kids to the park all afternoon while Alayna napped (daddy did some chores, and then we got to secretly birthday shop for Aidan shhh don't tell him). Oops forgot he can read now! I won't spoil it by telling you what we got him (tune in on the 22nd for the party pics!)

Even Alayna got into the coloring (with crayons that is, we thought we better save the dye for next year!)

Aidan was super excited this morning and found Alayna's Easter basket then his own...then he hunted down all the eggs.

After church we posed for some pictures (neither one was too happy with me for that....either she was smiling or he was smiling, but not one picture where they are both smiling. ) Trust me I won't quit my day job for a photograpy career!

We hope you have a wonderful day celebrating our Risen Lord~ Alleluia!!!

Your prayers WORKED (we think)!!!!

Sorry folks no pictures today (they would be of Aidan with his fingers in his ears and baby sister screaming...) . Only while we were at the doctor's office. As soon as the needles were through Alayna nursed and slept she was so tired.

Alayna did well at the doctors office. Dr. Rozina is very impressed by how well she has grown and all the great tricks she is doing. She was up to 13 pounds 9 oz. today! She is still only 23 inches long (she probably will be as tall as Grandpa Perry!)

We had blood work done (another cbc) and the 6 month shots. Our sweet nurse, Lisa got us the best phlebotomist that works there to do the blood draw. Unfortunately, she wasn't able to get a vein either (those darn things are TINY). Alayna didn't even cry when the needle went in but did cry after she had to dig around a bit to try to find the vein. They looked at the other arm but decided to do the heel stick. Alayna wasn't thrilled with the squeezing and squeezing again. She definitely let them know she wasn't pleased. But, it was a much better experience than last week. I think just because the lady was so sweet and compassionate which made ALL the difference.

Dr. Rozina just called to let us know that Alayna's platelet count is back up to now above normal (from 88,000 last week to over 500,000 today), normal is 150,000-450,000.

She will send the results onto the hematologist at CMH and we will hear from her Tuesday but, hopefully we won't have to keep our May appointment with the hematology clinic.

But, I suspect that since she was low last week and high this week they will be looking into this matter more closely.~ We Praise God and thank YOU for holding our sweet one up in prayer.

Please continue to lift Alayna up that this platelet count is NOT a sign of a more serious problem.

God is definitely good and as it is Good Friday (although I am sure Alayna would say it isn't such a good day) if you don't have a super place to worship Him we would love to invite you to
Kaw Prairie at 7 pm tonight for a cool service or 8:45 or 10:30 every Sunday morning.

Happy 6 months sweet LC Grace! We love you!

Alayna is 6 months old!

Make an on-line slide show at www.OneTrueMedia.com

Time never stands still...and when you are holding a sweet little one it seems to go by faster and faster. We are so thankful for the blessings God has granted us. Especially our wonderful children.

Please join us in saying thanks to God for the wonderful blessing of Alayna as we celebrate 6 months of her life today! It has been an awesome journey so far, and we look forward to so many more exciting days to come.

We thank you for your continued support of our family!

We go to the doctor tomorrow morning for her official 6 month check up and shots. She will also have her follow up blood work done next week to check her platelet count again as it was a little low last week when checked at the down syndrome clinic.

She is LOVING eating real food and having no feeding issues (Praise God!) She moves that food around with her tongue and swallows it down and then begs for more. Hope she is so pleased when we start green beans....

Bring on the real food...

As we are just days away from Alayna being 6 months old, we decided today would be the day to try her first solids. We bought rice cereal, we drug the high chair up from the basement (then proceeded to clean it off...I am not sure if that was left over food from Aidan or not?), Aidan set up the video camera and got the camera.

We tried Alayna out in the high chair before making the cereal just to be sure her head was indeed steady enough to sit upright and eat. What do you know? Of course it was. She was very excited about the high chair and all our excitement.

Thankfully we didn't frighten her with our giddiness. I think Aidan was the most excited...Daddy jumped right in to feed her as mommy is always the bearer of good foods...Alayna went to town. She LOVED it and smacked her lips for more. Aidan fed her a few spoonfuls and danced around singing she loves it, she loves it!

Obviously, the apple didn't fall far from the tree we ALL love to eat...

Tomorrow afternoon we are going to the DSG Easter Egg Extravaganza so I am sure I will have more pictures to post.

Down Syndrome Clinic update

Alayna started the day out at 5:30 this morning (she is usually not up until 7) but, today was her buddy, LC's gtube surgery. So, Alayna wanted to make sure we were up before 6 when LC went in for surgery so we could start praying. Thankfully all the prayers worked. LC came through surgery well...please pray for a speedy recovery for her. We just missed getting to visit her as we had just left CMH when Courtney sent us a text that they had arrived in a room. BUMMER!

We sent Aidan off a little after 7 to play at Josh & Liz's house (Super huge thanks)....Then we were off to the down syndrome clinic for our 7:45am check in time. Of course we got stuck in morning rush hour and didn't end up getting there until 8:05 (and that was with the crazy, English UPS driver behind the wheel).

Our visit lasted until mid morning. Alayna was seen by 6 different specialists in all. We just hung out in a room and they came to us. Pretty cool to not have to drag baby & gear from room to room.
Here are the stats from our visit:
Weight: 13 pounds 1 oz. ( 8 pounds, 3 oz since birth)
Length: 23 inches (6 1/2 inches since birth)
Hearing :Passed both ears with flying colors (not any fluid to be seen in there either)
The social worker, OT, and feeding specialists all thought Alayna was on target and doing really well. She will have a vision screening May 4th (no concerns just routine).

Finally, we had to have the dreaded blood work (standard for all). This would check her thyroid functioning, etc.

We walked into the lab and the girl at the counter did NOT have a happy look on her face. At that moment I began to pray "Please don't let this be the lady that sticks my baby".

Well you guessed it folks. (I would like to talk to the HR department about their screening process for their phlebotomists, do they let them stick them during the interview process to see how well they do BEFORE hiring them?) ok I digress...

We went into the drawing room and this delightfully, unhappy lady followed. UGH! She worked at getting a vein with no luck but, proceeded to poke Alayna and DIG around in her arm 4 times. AHHH! I was stamping my foot in pain for my sweet baby girl...

I was just about to scream STOP when God must have laid it on this lady to walk away from the crazy mother or else. So (without me opening my big mouth) she stopped on her own and went to get reinforcements. Thank you God...

The next lady we had couldn't find a vein either (must be something with April fools day)...But, instead of just poking my baby and hoping to find a vein she opted for the foot stick. Alayna didn't so much mind the stick but, HATED the squeezing afterwards to get 2 vials full. She screamed more than I have ever heard her scream. But, as soon as that lovely lady stopped squeezing her foot she was back to her cooing, happy self (Thankfully!)

Oh, I didn't tell you Jason was sitting down across the room while all the needles were flying. I offered for him to hold Alayna but, he politely said, "No dear you are doing a fine job"...chicken!
(And just think we have our 6 month check up and shots next week...maybe I will call in sick and send Jason...ok for Alayna's sake maybe not!)

As we were done earlier than expected we grabbed a bite for lunch (Mi Ranchito, yummy!) and headed to IDC for baby class. We are all SO tired now from a long day. (More good news...LC is joining us next week in baby class! and we couldn't be happier about it).

Must run to get Aidan off the bus!

Hope you have a great April 1st!