Thursday, April 24, 2014

Kindergarten transition

Today is our kindergarten transition IEP's for the girls.  Wish us luck.

Here is the video that I made for the meeting.




Tuesday, April 22, 2014

Happy birthday, Aidan!



Eleven years has passed 
and I can hardly remember life without you.

You taught me how to love unconditionally and without abandon.

Aidan, you have delighted us from the moment we found out we were pregnant.

Your caring, tender heart and desire to serve others
always takes my breath away.

You are intelligent, handsome, loving and kind.
Resourceful, talented, silly and quick witted.

Aidan,
You are a rising star!

We are so proud of the young man that we see maturing before us.

We pray that you always seek God's will and follow His path.

We pray this 11th birthday is blessed beyond measure!
We love you no end!
xxoo

Monday, April 14, 2014

Busy but fun weekend

April seems to be crazy busy for us between church, school, piano, soccer, dance, recitals, birthdays and everything in between.  We are booked solid.

This weekend was no different.

Saturday morning the boys headed to Aidan's soccer game while the girls and I took in the Easter egg hunt at our church.  It was a beautifully sunny day for being outside!

One girl was hopping over to maul hug the bunny while the other one was a little standoffish.

They soon got to business harvesting eggs.  There were hundreds of them!

My child who usually doesn't care for sweets too much decided to plop down and investigate a York peppermint pattie.

One taste and she was in heaven...she decided the hunt was over she was going to chow down on the treats!

Alayna decided hunting eggs wasn't fun enough so decided to practice her dance moves!


Once Dariya was cut off the chocolate she decided to throw a fit cry a bit.  
Dominic to the rescue!  He is a peer model in their pre K class and also is in Sunday school classes with them.  He said, " Come on Dariya" and away they went to the play set, happy as can be!

Is this the cutest?
I told his mom to expect a double date for prom.;)


Sunday brought church, a dance competition for the girls and more volunteering at church for Aidan and I, some birthday shopping for the soon to be 11 year old (more on that later) and another soccer game that thankfully, darn the bad luck was canceled due to the thunderstorms ;)

I love that I caught Dariya in mid jump!  So cute!
Both girls LOVE dancing and love performing!

The crowd always goes crazy when the girl's dance troop comes on.

We are blessed to have such a great set of volunteers to work with our girls.

What a busy but, fabulously fun weekend we had.
We hope your weekend was super fun too!

Thursday, April 10, 2014

Piano recital

Aidan 's piano teacher, Ms. Nancy held their recital this week.

The kids all did a fabulous job.

Aidan still loves music and enjoys learning all different genres.

He still amazes me at his ability and ear.

Here is a glimpse of the evening mainly for the grandparents! ;)



Aidan didn't get to play Fur Elise on the program but, wanted to play it on the grand piano before we left so excuse the background noise as the recital was finished at this point.

Friday, April 4, 2014

Weighted blanket update

If you didn't see my first post about making Alayna a weighted blanket you might want to check that out first.

I have been asked numerous times for an update on how the weighted blanket and Alayna's sleeping has been.

All I can say is...pretty fabulous!

I wish I would have made the blanket much sooner.

The first night she slept straight through the night without waking for 11 hours.  Then we had a few nights where she woke up but we put her back in bed and put the blanket on her (which she LOVES) and she went right back to sleep.

It has been a huge improvement.

She asks for it many days when she is snuggling on the couch reading or watching tv.  She absolutely loves it.

I am waiting for the company to give us more poly pellets and then I will make Dariya one.  But, she is sleeping better as they aren't waking each other up every night.

I highly recommend making one.  They were pretty cost prohibitive for us, especially with two girls but, wow what a difference.


Have you made one?  What has your experience been?

Thursday, March 27, 2014

Spring break in the hospital, bummer

The kids spring break started on Friday, March 14th.  It was a beautiful day so we picked up one of Aidan's friends and took in a park all day.  Saturday was equally as nice, if not nicer so we again took in a park for several hours.  The girls wore themselves out on the playset while Jason and Aidan practiced soccer skills.

By late Saturday night Alayna was running a mild fever.  The fever continued for the next few days while adding in a lovely middle of the night cough.  I was sure she had croup so didn't run her to the pediatrician.  By Tuesday she was perking up and not running a fever anymore and we were making plans for fun activities for the rest of spring break.

However, Wednesday morning brought a lethargic and fever ridden girl.  I called our pediatrician and couldn't get in that day so took her to urgent care.  Once there she was seen in minutes and her oxygen saturation was 82 (normal is 100).    The urgent care doctor did not want to go any further and sent us on to the ER.  We made it to the ER of the children's hospital in about 15 minutes and were again seen immediately.  Her O2 sats were a little higher by that point, around 87 but still not great.

They did breathing treatments, suctioning, and xrays to try to find the cause and came up stumped.  Three doctors thought it was pneumonia even though it didn't show up on her xray.  At this point I was praying for pneumonia so we could get antibiotics and go home.  They started antibiotics and did more breathing treatments and put her on oxygen but couldn't get her O2 sats above 90 so she was admitted about 9 pm Wednesday evening.

That evening was a complete blur as we got no sleep for all the doctors and respiratory techs in and out trying to get her oxygen levels up.  By Thursday she was still having much difficulty breathing and they swabbed her nose to run tests for many viruses.  

By Thursday afternoon she was on 100% oxygen and still unable to raise her O2 sats above 85.  This earned her a trip in the coolest ambulance ever to the main children's hospital, headed for the ICU.  Thankfully right before the transport team arrived the doctor had begun continuous nebulizer treatments on her for 2 hours and that brought her oxygen levels up high enough that we avoided the ICU but, we still were transferred to the main hospital as the feeder hospital doesn't have an ICU and they were concerned that she might still need it.

Once at the main hospital we were given the RSV diagnosis!  UGH!  She has had it twice before and was hospitalized for 3 days both times.  So we knew then what was before us.

She tried to sleep when she wasn't woken for treatments and testing.  
On Saturday she was off oxygen for 7 hours but, as soon as she fell asleep she started desatting again which earned us another day (or more)!

She enjoyed popcorn and movies in bed once she felt a little better.

Finally, Monday she was off oxygen at noon and remained off all night long.  When her doctor came in on Tuesday morning for rounds Alayna and I were both overjoyed with the news that we could leave our little home away from home.  I was a little concerned as she was loving all the attention, tv from bed watching, ice cream etc that the hospital had to offer.

Back to reality sister!


We are so grateful to Aunt Jane and Uncle Ed, Janette, Scott and Amy, and Tammy for keeping Aidan and/or Dariya for us so that Jason could come to the hospital.

We are thankful to Chris, Scott, Megan and Brett, Amy and the DSG, Sarah and Shan, Ed and Jane, Elise, Grace and Rayne, Kylie and family, Dick and Diane, Paul, and the whole transportation department from the school district for visiting and or spoiling our little princess upon her return home.

Praying we never see the RSV bug around these parts again!

Thursday, March 20, 2014

Second verse same as the first: hearing loss

Last week I took Dariya back to the audiology clinic for further testing to see if they could pinpoint better her hearing loss on her left side.

Unfortunately, the results were the same as 6 weeks prior.

Right ear is in the normal range.

Left ear is profoundly deaf.

No aids would benefit her at this time.

Our main concern right now is educationally how this will effect her.  We know that her kindergarten class will be double the size of her PreK class.  With her type of unilateral loss it is hard for her to hear speech with background noise and to localize sounds.

It will be harder for her to hear and tune in to what the teacher is saying with a crowded classroom of kids.

The bonus is Dariya loves school and does compensate really well with her right ear.

We will just have to keep an eye on that right ear to make sure it is always hearing well so that she can continue doing so well.