This is Clare, she is 4 years old. She was found abandoned and rejected in 2007 in a public area in China because she has down syndrome, cleft palate and other health issues. She was placed in an orphanage, while a search for her parents was done. Her parents were never found so she was admitted as a resident. She was then sent to China Little Flower, a healing home--run by a church in Nebraska, for hospice care. A g-tube was placed for feeding and instead of dying, she got stronger. She has had 4 very close battles with death from pneumonia. She is now on "palliative care", which means she is not allowed to see a doctor.
Her oxygen levels are in the upper 70'-80's (normal should be 97-99%) and 40-50% when she is sick. Little Flower does a great job of keeping her alive. She is the oldest child there. She has down syndrome, cleft lip, cleft palate, CHD, VSD, PFO, PH, tricuspid valve cleft cusp, tricuspid valve back flow, g-tube.
Clare has never eaten food, instead has only received pediasure through her g-tube. Clare doesn't speak or walk, but has started trying to. This girl needs to get to the US asap to get the much needed medical care that China is unwilling to give her.
Fast forward to today, Clare has a forever family, Dewey & Suzanne Fristoe right here in Kansas City are working desperately to bring her home. They aren't newcomers to the ds and medical complication world either. Their youngest daughter was born with that extra chromosome and multiple heart defects.
If you were at the airport for Dariya's homecoming you probably met Suzanne. She was one of the first people to email me and volunteer to be at the airport to video or take pictures or whatever we needed. She has a servant's heart.
They have completed all their paperwork and are awaiting their immigration clearance from the United States. China has already agreed to expedite Clare's case due to her immediate health concerns and need for surgery.
Only thing stopping them from bringing Clare home...you guessed it MONEY! They are still needing to raise around $16,000. They have done bake sales, garage sales, benefit concerts and have applied for grants. This family is looking to travel before or around Christmas. They have bought an iPad2 but only have $250 worth of donations to their fundraiser!
I am pleading with you to pray for this family, visit their blog, Our Chinese Butterfly and support their iPad2, (32 gb wifi) & iPod Touch, (8gb 4th generation giveaway). Just a $10 tax deductible donation via Reece's Rainbow. You can also donate other prizes, blog/FB/Twitter their giveaway and help them get the word out. They desperately need help.
If we stand alone we can do nothing but, together as the body of Christ can do amazing things.
Clare knows her family is coming. Here she is opening her care package from them.
Do you think she is thrilled to be getting a family or what?
Won't you stop by and help be part of Clare's homecoming story? Our Chinese Butterfly
Speak up for those who cannot speak for themselves…defend the rights of the needy. Proverbs 31:8,9
7 comments:
I need to get a job, because it kills me that i just don't have the money to help these kids. I was just watching a show, the lottery changed my life, and was thinking...do you know what I could do with that money? An organization in Arina's name, to help families fund adoptions. An organization in Jax name, to help families get medical equipment that wasn't paid for by insurance. Praying for this family.
I read this story last night. I hope others donate and they meet their goal by Christmas.
I would love to help. Can I have their blog?
Our Chinese Butterfly is a link! It took me a while to find it since the color was the same as the text color. Off to read more and donate!
Will pray for this little girl & her parents-to-be & will share the link with others.
Palliative care does not mean a child cannot see a doctor. Palliative care is specialized care focused on the pain, symptoms and stress of serious illness & there are physicians who specialize in this branch of medicine, so yes, doctors are very much involved in the care of a child who is receiving palliative care. My son had a palliative care doctor before he was moved to hospice, but even on hospice, he still sees his doctor when needed. I would hope that if this little girl is on palliative care, she would see doctors as needed. It wouldn't be palliative care if she weren't.
Thanks for your support Kate and thank you for the clarification on palliative care. I know that is what it is in the US but in China at her healing home it means she is only taken care of by the caregivers no doctors are seeing her anymore. I should have written it more clearly. Hope this helps clear it up.
Still paying off our three adoptions, but will pray for mountains to move and praising GOD that she has a family!
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